The Boys in the Moon at The Cultch

One family’s deeply moving story about raising an extraordinary son.

Based on Canadian journalist Ian Brown’s memoir of life with his son, The Boy in the Moon tells a deeply moving story about a family’s struggle to raise a child with a severe disability.

Ian and Johanna Schneller’s son Walker was born with a rare genetic disorder, Cardiofaciocutaneous (CFC) syndrome. It made him unable to talk, eat properly, or take care of himself. The family must face complex issues most of us do our very best to avoid. They say things which in other contexts might seem unforgivable but here are brave and critically necessary.

The Boy in the Moon is a story of pain and beauty that asks vital questions about family, frailty, and the values we ascribe to human lives, our own, and those around us.